Day: March 15, 2021

There are a lot of rollercoaster emotions involved with having a chronic illness. Sometimes I feel like I am handling everything great, content and semi happy. Other times I am so distraught and unhappy about where my life is. This tends to happen when I am trying to do something as basic as getting myself a drink and I am not able to do it. I plan it all out in my head. I walk with my walker to the kitchen, then I grab my cup from the cupboard, then I walk to the fridge and get ice as I wait for the ice to come I start to feel tightness in chest and shortness of breathe. I think I can just push through it, “come on just a few more minutes…” but then I realize nope I need to go lay down. I look at my cup and all it has is ice. So I politely ask my mom to pour my drink.

That is an average day in the life of a chronically ill person. Something as basic as getting a drink can make me so upset and frustrated with myself. I have learned to not be hard on myself because honestly it doesn’t help at all. There are times when I need to just rest and being chronically ill your body never gets the rest it needs, so I never feel well rested.

I follow a few different people on Instagram who are chronically ill. I follow this one girl named chronicallyhealed and she found out how to heal herself from POTS and Lyme disease. WOW, wouldn’t that be amazing to be back to life. To go out with friends again, go on dates, go shopping, go on vacations especially Hawaii and just live my life again.

Okay, okay I know I am still technically living my life. I mean I am here so that counts right. But just as Genie says from Aladdin “but to be my own master, such a thing would be greater than all the treasures in the world..” To not let me illness control every second of my day.

I just want to wake up healthy again, this post isn’t to make anyone sad it’s to remind you that you are blessed and your health is very important don’t take it for granted.

One of the most annoying things with being chronically ill is tomorrow or next month or next year I would wake up and be totally healthy and that not knowing is the hardest thing. So right now I decide in this very moment to LIVE for the moment! I choose to be content. If I want to play with makeup today I decide to. If I want to go to Ulta or the bookstore with my walker and my mom I decide to. If I want to sing today I decide to. If I want to create a YouTube video today I decide to. If I want to go outside I decide to. Do you understand the pattern we HAVE the ABILITY to make our own decisions and that is sooo POWERFUL.

I know you can’t choose what happens to you but you can choose how react to it and sometimes that can be more powerful than the circumstances.

I wrote this 2 years ago and it’s even more true today.

Love, T