Health Journey

On June 26th A Year

Today marks a year.

A year of being sick.

A year of feeling alone.

A year of people not understanding what I’m going through.

A year of willing and wishing to get better and each day it stays the same.

A year of prayer to get better and for something good to come out of it.

A year of tears and crying sessions.

A year of planning things and then having to cancel because I am still sick.

A year of having to stop going to church.

It’s been a whole year. I am not normally a person who remembers dates but I do have a few in my life that really stick out. Christmas: December 25th, My birthday: October 21st, My cancer diagnosis day: October 18th, and the day my episode started last year: June 26th.

This day, June 26th, has been on my mind for a while now. I kept putting goals in place. Last July I was thinking, “I will totally be better by my birthday in October.” Then I wasn’t. Christmas is in 2 months, “I have to be better by then.” Again it didn’t happen. These “goals” made me feel like a failure, like I couldn’t “make myself better.” Like my faith wasn’t strong enough to get me through this difficult time. “I can’t be sick for another month this is crazy,” I kept telling myself. I was almost in a dazed state of confusion that this was still happening.

Then my episode hit the 6 month mark and I was so ready for it to be over. By this time I had been away from church for 6 months, hadn’t been able to leave the house much, finished all the Netflix shows I could think of, and was just ready to “start my life again.” Start my life again? That implies that I stopped living when I got sick. I “died.”

But I DIDN’T die, I am still here. I am still breathing.

Sure, my life looks very different than it used to. But I can use my mind in anyway I want and I CHOOSE to make my own decisions. If I want to be artistic, I can. If I want to text my friends, I can. If I want to tell my mom a long, step by step story of exactly what happened in the show I am currently watching, I can. The bottom line is I can’t control what gets thrown at me but I can control the outcome. If I am too tired to do something one day then I can choose to do it  another day.

It’s all about decisions. As much as we think our days are all mapped out, I am here to say they are not. Even someone who works everyday doesn’t know if something will happen and they can’t go to work that next day. We never know.

That’s why for my life I choose to live in the PRESENT. I base my decisions on the now, and not push and hope looking at the future because in all honesty I don’t have that luxury right now.

Live in the Present.

Health Journey

Decisions

It’s funny how we can procrastinate when we know we need to do something that we just don’t want to do. Or wish the problem hopefully goes away. Like when we are supposed to be losing weight or eating healthy and just because we have to, we choose not to.

Today I am so exhausted.  I did not sleep well last night because I was worrying about an appointment, and once it was over I was so tired from all the anxiety and stress that went along with preparing for the appointment. I know I need to nap, but I really just don’t want to. And if I don’t want to do something, believe me, I really won’t do it.

I sometimes pride myself in being able to decide what I want to do and I don’t let myself get pushed into anything.  I never give in to peer pressure. If it’s a really serious thing, I need to do (like when I needed back surgery for scoliosis) I did what I needed to to prepare and forged ahead.

Now today, I kept telling my mom that I was tired. So she said, “Do I need to take you in the car, so that you can fall asleep like when you were little”? That just made me smile and laugh. Threw me back to a time when life was just easier. I didn’t have this illness. I didn’t have fear at all. I didn’t have to worry about relationships or money problems. I could just be a child.

There is a bible verse that says “When I was a child, I talked like a child, I thought like a child, I reasoned like a child. When I became a man (woman), I put the ways of childhood behind me.”

1 Corinthians 13:11 NIV

It was much simpler when we were children, running around outside, finger painting and not caring about the mess, eating whatever you wanted, meeting new friends at the grocery store. Now we are adults and we may have put away childish things, minus things we still like (Disney movies).

I think it’s totally fine to think about the past and the easier times in life as long as it makes you smile and you move on, continuing to move forward to the present and into the future.

Health Journey

Let Go, Let God

We are just moving through life with good things happening. But then something comes up, interrupts our lives, whether it’s a change you weren’t expecting, a death in the family, an illness, an accident, losing a job, or moving. We are just going along “skipping through the tulips,” when all of the sudden BAM! And it’s very easy to drown in self pity.

This can create a situational depression, the feeling of hopelessness, sadness, worthlessness, and overall negative emotions. I am not afraid to say I have struggled with all of that before and am currently still working at it each day.

When your life changes in the blink of an eye it tends to hit you hard. That’s how I felt when my life went from “living my best life”, to not having the ability to do any of the things I used to do let alone get out of the house. My chronic illnesses really interrupted my life…but does it have to be an interruption? What if it could be just a whole other path to take?

Often, when life is going good it’s easy to push God to the backseat of your car and say “I’m good, just living my life.” Then when a crisis occurs, it’s hard to let God steer when He is stuck in the backseat. I have always given God the wheel and have trusted Him to take me wherever He wants and have tried not to be a backseat driver. That’s why I love the Carrie Underwood song “Jesus Take the Wheel.”

When that illness, fear, accident, negative situation happens, you are armed with the Holy Spirit to fight your battles not for you but WITH you. I do struggle with depression and sadness through all this illness, but each day I am working through it, getting the help I need, and letting God use me in any way I can even if it’s just through this blog.

Health Journey

You Are Not Alone

Being chronically sick you often feel alone.

Your friends are going out, moving on with their days, weeks, and months. As my dad would say when I was younger “Girl, you are outta sight, outta mind.”  I knew it wasn’t a particular friend not wanting to be my friend it was just easier for them to go on with their lives when I wasn’t around.

That’s pretty much how it feels when I am sick. I KNOW my friends care about me so much, but it’s easier for them to think of me when I am around. I understand.

I think I am alone…and then a cute little furry friend surprises me and jumps onto my recliner. Yes, that my Bella. She’s a 8 pound Yorkshire Terrier. And a blessing from God. We found her at the perfect time. But that’s a whole other story. God knew I needed her in my life.

There’s that saying, “It’s a dog’s life.” People used to refer to that as if to say a dog’s life is a very hard life. But to me it’s the opposite. My dog lays around all day. The best part is that she lays with me. Wherever I am, she is.  If I am on the couch, she is laying on my feet. If I am in my bed, she is curled up right next to my body. If I am in my recliner she lays on the foot of it or under the foot rest. Lol. If she hears her dog friends outside she will go and bark and visit them but then no matter what she always comes back. She never leaves me.

This is a great example of how God is, He never leaves us. If we are in the deepest, saddest place He will be with us there too. If we pull away with all our human might, He will come find us. He is the shepherd and we are his lambs.

I think often when we are upset we feel like God is not there or He doesn’t get near such pain, like He is too holy to be near me when I am in such a dark place. But that’s NOT the case at all when we are in are deepest sadness He is there holding us, comforting us.

That is a great mental picture to think of when you feel alone. It really helps. He meets us where we are. Just as Bella is my support/therapy dog she is always comforting me. If I am feeling really sick she knows and gets closer and closer to me. If I am crying she nudges forward until she she reaches my crying face. Just her happy little self makes me smile when I look at her.

Puppies are the best medicine, like babies. Even when she is laying cute we are always like “aww she’s adorable.” She is very special to me and completes our family.

Therefore I know I am not alone because I have God and my support dog Bella with me always. When you feel lonely try to distract yourself. I play with my dog or color with music on and really just try to relax. You can too. Find your own “Bella” and find comfort in yourself, God, and the people who are there for you.

Health Journey

Emotions

It’s crazy how much your emotions can effect your physical health. Like if you are worrying about going somewhere, your body can make something wrong to the point where you don’t have to go anymore. Even if someone is worried that they’re pregnant the stress of that can stop their period. When someone has anxiety it can create more symptoms from the worrying. It’s crazy!

For me emotions affect me so strongly. If I have a really negative day where I am just crying and really upset about being so sick then my body can feel so sick and heavy like I can’t even get out of my recliner all day. But when I force myself to get up and go outside it slowly helps. Like the other day I was so upset, I was even being rude to my mom and all she does is help me. I decided I didn’t want my day to be ruined so I went outside sat down in the sun, played worship music, and just breathed in the calmness of nature. I was able to stay out there for a few minutes before I started to burn (pale skin).

Just that little motion of changing my surroundings, shutting my mind off besides talking to God, and just really focusing on all the beautiful things around me. I listened to the mourning doves cooing. Felt the warm breeze hug me tightly. Saw all the vibrant colors, I felt like I was seeing the world for the first time in a while. Like in Twilight when Bella becomes a vampire, how ever single detail and all the vivid colors she sees.

Emotions are strong. Even stronger than logic sometimes. But nothing or no one is stronger than the Almighty Father. We are in His gorgeous creation.

I think sometimes we focus on all of our own problems and what’s going wrong, we forget to “stop and smell the roses.” If you can find one little super small thing that is positive in your day and focus on that you will be surprised on what the outcome could be.