spoonie – Teresa Love

Yesterday was ME/CFS awareness day. It shows really hope much this condition is a spectrum. Some people are mild can work etc, some are moderate can do little things but crash often, others are severe can’t even get out of bed at all.

It’s sad to see and a lot of posts can be relatable. But for me I can’t let myself sit in the sadness. I’m not going to be an advocate for chronic fatigue/ ME. I don’t want to give that much attention and stress to tell people about my condition.

Ever since Covid there’s so many more people who are getting ME/CFS and or POTS. Which is good for research and treatment…bad for those people. You have to be REALLY strong to handle this. I know. And you need God.

I’m done with that. If I’m using a mobility aid, I’m not going to explain to the person what my conditions are. I’m just going to enjoy my day.

I have some friends that focus on advocacy and I swear the stress and fear surrounding those conversations makes them more exhausted especially mentally.

I’m focusing on me. My health. My mind. My peace. Giving it to God. Letting go letting God.

Happy Disability Day!!

This was going out without my walker and it felt amazing

Some things I have been struggling with through this wellness journey I am on. If I’m not as sick as I was and don’t need a mobility aid to walk am I still identified as disabled? Like I think I am because I still need to rest a lot and there are definitely times when I’m out with bf or parent that I need something extra like sit down while we are shopping.

I used to be scared to say I was disabled. Like by saying those words it meant it was a forget thing and I gave up trying to get better. But that’s not the case at all. I can be disabled and still live a thriving life.

Just my thoughts, for today. Anyone who is disabled. I send good thoughts, prayers, and many spoons to you! 💕🥄🥄🥄💕

Love, T