Tag: CFS me

Health Journey

Gotta Catch Em All…NOT NO THANK YOU

Teresa Love

As Rick’s cousin says “you need to stop collecting conditions like they are Pokemon to catch.”

This is so very true! So I have many complex chronic illnesses. I have POTS, CFS/ME, Vestibular Migraine, Small fiber neuropathy, CRPS, anxiety, depression…I wonder why?, EDS/Hyper-mobility, and which used to be the newest Pokémon I caught.

Which cause my joints shoulders, hips, neck, knees, and ankles to “go out of the socket sometimes with the least amount of movement, it hurts.

Ohh nope that’s not my newest condition. The other day I had my blood sugar tested just cause I’m in the Medi-Cal system new primary appointment. And my A1C was 8.3 so APPARENTLY I’m a diabetic now. The doctor thought maybe type 2 but that wasn’t even confirmed. So what’s Teresa’s fears? Hmm doctors, hospitals, needles….OH WAIT. Needles need to be used to test my blood. So now I have to test my blood. I haven’t got the hang of doing it myself yet causes me a lot of anxiety to do the poke but it’s only been a day.

So if I wasn’t already scared enough for listening to my body and making sure nothings an emergency. I sure am now. It’s insane how much these symptoms over lap with my other conditions.

According to ChatGPT yes I’m using this!

🔄 Symptoms high glucose and your conditions have in common

1. Exhaustion / fatigue

  • High glucose: cells aren’t using sugar properly → low usable energy
  • POTS/CFS-type issues: poor circulation + autonomic dysfunction
    👉 Feels like: “hit a wall,” heavy, drained

2. Dizziness / lightheadedness

  • High glucose: dehydration + electrolyte imbalance
  • POTS: blood pooling, heart rate changes
    👉 Can feel almost identical

3. Nausea / stomach upset

  • High glucose: slows digestion and irritates the gut
  • Your conditions: autonomic dysfunction can also affect digestion
    👉 Nausea, bloating, or even diarrhea

4. Headaches / migraines

  • High glucose: inflammation + fluid shifts
  • You already asked about migraines → big overlap
    👉 Can trigger or worsen headaches

5. Brain fog / confusion

  • High glucose: affects how your brain uses energy
  • Your baseline: fatigue + meds can already cause fog
    👉 Hard to tell apart sometimes

6. Rapid heart rate / “off” feeling

  • High glucose: dehydration → heart works harder
  • POTS: heart rate spikes with position changes
    👉 Feels like your system is “out of whack”

7. Weakness / shaky feeling

  • High glucose swings (especially if dropping from high):
    👉 can feel like a crash, even if not true low blood sugar

🚨 The tricky part

Because there’s so much overlap, it’s easy to assume:

“This is just my normal condition acting up”

…but sometimes it’s actually:

blood sugar being too high

So now I’m like how many times when I was so nauseous in bed was it POTS or high blood sugar?

It kinda feels like what do I believe. Okay I blackout from POTS. Yes that true. And I have eye issues with vestibular migraine. And I’m obviously exhausted with chronic fatigue but also that can be diabetes.

My niece has type 1 diabetes she’s only 5 years old. But now it’s all she knows. I think if she can do it I can do it. But she doesn’t have the over thinking side of it. The trying to stay away from sugar and it causes more depression, the fear of needles, ALL the other conditions I have.

Lately well for a while now, I’ve been using to use something to be able to sit up or go to something like out to dinner with hubby. I would need alcohol or soda. But now either are options!??? Am I going back to those 5 years where I could barely leave the house cause I couldn’t be upright for long enough to do anything!?

NO, I refuse to go back to those times.

Now that I’ve gotten a lot of emotions out let’s do what Teresa does best find the positives.

My dad texted this “I have been praying hard for you and maybe this latest challenge is an insight towards healing? Maybe the sensor needed to collect data needed to move the needle in the right direction and it will fix something. I still have hope.”

My mom texted

There is HOPE cause there’s one stationary belief that I have and that’s having God fight these battles with me.

I hear this song Battle Belongs.

“When all I see is the battle, You see my victory
When all I see is the mountain, You see a mountain moved
And as I walk through the shadow, Your love surrounds me
There’s nothing to fear now for I am safe with You

So when I fight, I’ll fight on my knees
With my hands lifted high
Oh God, the battle belongs to You
And every fear I lay at Your feet
I’ll sing through the night
Oh God, the battle belongs to You”

One thing I noticed today was sometimes diabetes awareness has a butterfly and a butterfly 🦋 has always been my own sign of HOPE.

So for now let’s take deep breaths, keep praying and hoping.

Love, T

christian, Health Journey

It’s Been a Crazy Week!!!

Teresa Love

God is good!!!

Life has been a whirlwind lately. As my boyfriend Rick and I have been getting to know each other and learning everything about each other. We discovered that even at a early time of dating we loved each other. And now fast forward 9 months! We are planning to find a place to live and get married.

This is not a love letter to my boyfriend. It’s a “wow I can’t believe this is my life right now!?”

7 years of being sick 4 of them being close to housebound and now I am in the process of finding a place to live away from my parents, I have a boyfriend who truly cares about me, and we are planning a wedding in the future. Like serious what is my life!?

Story time: months and months ago Ricky and I put our name on a waiting list for these apartments that weren’t even built yet. The wonderful this is they are literally 1 minute from my house now. This means with my health my mom can help me anytime I need, if he’s not home and I’m having a bad health day or symptom. We really wanted to stay in our same town as close as we could to my parents. Then on Thursday July 30th they contacted us. Asking if we wanted to come in for a tour? Of course we said “yes!” Scheduled it for July 10th which was in 2 Saturdays. I understood I needed to wait but I was starting to worry a little. Then Saturday morning they texted and said “you can come at 11:30am for a tour.” Of course we said “yes!”

We went for the tour. At first it seemed odd cause it was still a construction site and we knocked and no one answered. It was daylight so we weren’t worried and I have my big tough guy with me. Lol

So I called the number they texted me and they said “oh awesome, we are here we will walk down from the model home section.” We met 2 really nice ladies. They right away showed us the clubhouse which had a heated pool, pool table, high ceilings, tables and high seats, etc. it looked awesome!

Then they took us in the golf cart to the one apartment that is actually finished. It was absolutely beautiful. Loved everything. It didn’t feel too small which can be a big problem for me cause I get claustrophobic. I could totally picture us living there. There was a nice kitchen with all appliances. There was windows that brought in a lot of light. And a walk in closet which could be a nice way to hide some stuff (makeup drawers, book cart, bathroom cart, clothes, etc) and a bath/shower in the bathroom nothing was too short which can be a problem with our tall heights. Is was gorgeous and very home like.

There’s a little more process to do but we are looking at our expenses and planning to jump on the application when we get all our ducks in a row and they contact us again.

Then we decided to go look at rings. I knew I wanted to look and he didn’t know even my size so we went on a little trip to go ring shopping. First we went to the place he got my necklace which was for Valentine’s Day ended up finding the ABSOLUTE perfect dream ring there it’s unique just like I am as he said. So now we are starting the process to plan the wedding because the ring will take 2-4 weeks for it to come in since it’s custom. Exciting!!!!!!

Im just really happy, excited, joyful, and content. I still have my ups and downs with my health. Even a newish thing if I think too much or do too much for too long then I get a pretty bad migraine (so that’s fun…not)

But seriously I am feeling so blessed!!

For now. Please pray and send us good thoughts. We need to stay calm, relaxed, and excited. When God opens door we chose to walk through.

Love, T

Health Journey

Taking a Flight Without Anxiety

Teresa Love
Me on the airplane ✈️

After 7 years of dealing with my chronic fatigue off and on and then 4 years straight of it 24/7. I was finally able to do something I’ve wanted to do for so long.

My mom and I decided to just plan a trip to go visit our family friends in Spokane Washington. we had to fly since it would be an easier trip than driving.

There was definitely some fear and anxiety surrounding it 1) going to airport 2) going through TSA and 3) being on an airplane again. All the unknowns are the ones that tend to trigger my anxiety. Will I be okay in the drive there? Will I get sick while going through security like before? Will I not be able to sit up during the flight?

I’m HAPPY to say “I made it through it all.”

My wonderful boyfriend drove us to the airport which really helped my anxiety cause he distracted me on the way there talking and listening to music.

Then we were all loaded up wearing my backpack and my mom and I walked into the airport.

As we got closer and close to the security line I was getting nervous. But I kept saying “it’s okay, you’ve done it so many time before.” Trying to reassure myself. I read all the signs to make sure I didn’t have anything I wasn’t allowed.

I showed my Real ID (glad I had that!) and moved toward the security. This part kinda went into sonic speed, because next I walked up to the buckets put bag and shoes in it took our iPad and put it in the tote. There was a couple in front of us who didn’t seem to know what they were doing cause they were going too slow. But my heart rate stayed calm. Then I walked through the big machine stood there for 5 seconds with arms up, which I would have never been able to go before.

As I stepped out they stopped me and a lady with gloves started to pat down my chest and asked “is there anything in there?” And I said “just my boobs and bra.” We had a good laugh 😂 I got stopped before I have the pole in my back so the machine must have notified them. Then continued walking out everything back on and picked up everything and moved forward.

You have no idea how AMAZING it feels to 1) walk through security on your own 2) feel confident and “normal.” And 3) not feel like you were going to cause a scene or pass out.

This was definitely a really awesome milestone today! Did I still get sick on the airplane yes it was like car sick feeling. But we walked around before the flight and I was able to function walk to the bathroom alone.

I still don’t know how long this energy will last, but for now I am thankful and really enjoying the ride.

Love, T

Health Journey

Disability Day

Teresa Love

Happy Disability Day!!

This was going out without my walker and it felt amazing

Some things I have been struggling with through this wellness journey I am on. If I’m not as sick as I was and don’t need a mobility aid to walk am I still identified as disabled? Like I think I am because I still need to rest a lot and there are definitely times when I’m out with bf or parent that I need something extra like sit down while we are shopping.

I used to be scared to say I was disabled. Like by saying those words it meant it was a forget thing and I gave up trying to get better. But that’s not the case at all. I can be disabled and still live a thriving life.

Just my thoughts, for today. Anyone who is disabled. I send good thoughts, prayers, and many spoons to you! 💕🥄🥄🥄💕

Love, T

Beauty/Lifestyle Blogger, Health Journey

Resting is Self Care

Teresa Love

Hey it’s me!

Something amazing happens!? It’s really cool. Haha that reminds me of when I used to watch The Wild Thornberries and she’d say “she could talk to animals but it’s totally secret.”

June 26th 2021 marks 4 years straight of being chronically ill. Barely leaving the house, using mobility aids whether it’s my walker or wheelchair, and watching my life fly by while I’m stuck staying reclined almost 24/7 in my chair.

I don’t even know when this started but for a few months now I started feeling better. First I could walk without my walker for like 20 mins and I was amazed. Then I felt more strength in my legs from all the movement my doctors have me doing. Then I started to be able to sit up for longer periods 10 mins to 2 hours now. Now I can walk without my walker most days and do a lot more. Now to figure out life but that will be another post. Lol

Honesty it’s so FREAKIN amazing. Like feeling better, having energy and motivation to do more is so great.

But what I forget about sometimes is I’m still sick. There’s no cure for my condition so I may get to a functioning level, but I will still need to rest. And honestly I’m okay with that. At first I was like doing all these things each day and then I’d get to day 8 and be exhausted and sad. But now I understand that I need rest days, hours, and minutes.

So when I start to feel tired or worn down I just have to remember self care is important and resting takes priority over anything else.

Love, Teresa