Yesterday was ME/CFS awareness day. It shows really hope much this condition is a spectrum. Some people are mild can work etc, some are moderate can do little things but crash often, others are severe can’t even get out of bed at all.
It’s sad to see and a lot of posts can be relatable. But for me I can’t let myself sit in the sadness. I’m not going to be an advocate for chronic fatigue/ ME. I don’t want to give that much attention and stress to tell people about my condition.
Ever since Covid there’s so many more people who are getting ME/CFS and or POTS. Which is good for research and treatment…bad for those people. You have to be REALLY strong to handle this. I know. And you need God.
Here’s some symptoms
I’m done with that. If I’m using a mobility aid, I’m not going to explain to the person what my conditions are. I’m just going to enjoy my day.
I have some friends that focus on advocacy and I swear the stress and fear surrounding those conversations makes them more exhausted especially mentally.
I’m focusing on me. My health. My mind. My peace. Giving it to God. Letting go letting God.
As Rick’s cousin says “you need to stop collecting conditions like they are Pokemon to catch.”
This is so very true! So I have many complex chronic illnesses. I have POTS, CFS/ME, Vestibular Migraine, Small fiber neuropathy, CRPS, anxiety, depression…I wonder why?, EDS/Hyper-mobility, and which used to be the newest Pokémon I caught.
Which cause my joints shoulders, hips, neck, knees, and ankles to “go out of the socket sometimes with the least amount of movement, it hurts.
Ohh nope that’s not my newest condition. The other day I had my blood sugar tested just cause I’m in the Medi-Cal system new primary appointment. And my A1C was 8.3 so APPARENTLY I’m a diabetic now. The doctor thought maybe type 2 but that wasn’t even confirmed. So what’s Teresa’s fears? Hmm doctors, hospitals, needles….OH WAIT. Needles need to be used to test my blood. So now I have to test my blood. I haven’t got the hang of doing it myself yet causes me a lot of anxiety to do the poke but it’s only been a day.
So if I wasn’t already scared enough for listening to my body and making sure nothings an emergency. I sure am now. It’s insane how much these symptoms over lap with my other conditions.
According to ChatGPT yes I’m using this!
🔄 Symptoms high glucose and your conditions have in common
1. Exhaustion / fatigue
High glucose: cells aren’t using sugar properly → low usable energy
POTS: blood pooling, heart rate changes 👉 Can feel almost identical
3. Nausea / stomach upset
High glucose: slows digestion and irritates the gut
Your conditions: autonomic dysfunction can also affect digestion 👉 Nausea, bloating, or even diarrhea
4. Headaches / migraines
High glucose: inflammation + fluid shifts
You already asked about migraines → big overlap 👉 Can trigger or worsen headaches
5. Brain fog / confusion
High glucose: affects how your brain uses energy
Your baseline: fatigue + meds can already cause fog 👉 Hard to tell apart sometimes
6. Rapid heart rate / “off” feeling
High glucose: dehydration → heart works harder
POTS: heart rate spikes with position changes 👉 Feels like your system is “out of whack”
7. Weakness / shaky feeling
High glucose swings (especially if dropping from high): 👉 can feel like a crash, even if not true low blood sugar
🚨 The tricky part
Because there’s so much overlap, it’s easy to assume:
“This is just my normal condition acting up”
…but sometimes it’s actually:
blood sugar being too high
So now I’m like how many times when I was so nauseous in bed was it POTS or high blood sugar?
It kinda feels like what do I believe. Okay I blackout from POTS. Yes that true. And I have eye issues with vestibular migraine. And I’m obviously exhausted with chronic fatigue but also that can be diabetes.
My niece has type 1 diabetes she’s only 5 years old. But now it’s all she knows. I think if she can do it I can do it. But she doesn’t have the over thinking side of it. The trying to stay away from sugar and it causes more depression, the fear of needles, ALL the other conditions I have.
Lately well for a while now, I’ve been using to use something to be able to sit up or go to something like out to dinner with hubby. I would need alcohol or soda. But now either are options!??? Am I going back to those 5 years where I could barely leave the house cause I couldn’t be upright for long enough to do anything!?
NO, I refuse to go back to those times.
Now that I’ve gotten a lot of emotions out let’s do what Teresa does best find the positives.
My dad texted this “I have been praying hard for you and maybe this latest challenge is an insight towards healing? Maybe the sensor needed to collect data needed to move the needle in the right direction and it will fix something. I still have hope.”
My mom texted
There is HOPE cause there’s one stationary belief that I have and that’s having God fight these battles with me.
I hear this song Battle Belongs.
“When all I see is the battle, You see my victory When all I see is the mountain, You see a mountain moved And as I walk through the shadow, Your love surrounds me There’s nothing to fear now for I am safe with You
So when I fight, I’ll fight on my knees With my hands lifted high Oh God, the battle belongs to You And every fear I lay at Your feet I’ll sing through the night Oh God, the battle belongs to You”
One thing I noticed today was sometimes diabetes awareness has a butterfly and a butterfly 🦋 has always been my own sign of HOPE.
So for now let’s take deep breaths, keep praying and hoping.
You hear this saying a lot during this new year time. New year new me? But what does this really mean? Have we made it through the whole year just to change some things in your life since it’s a new year.
Or is it an arbitrary saying created by people who didn’t just survive last year but actually thrived?
I personally feel like you don’t need to start this new habits in January, you can start them whenever you’d like. I wanted to get back into the Word and really focus on my spiritual practices. But I didn’t wait til January, I actually started in December.
I’m proud that I did that. I started a devotional on the Youversion app that was called “New Testament in a Year.” This plan chooses a month and you start.
I’ve also liked sitting outside, listening to worship music while I read the devotional. That’s been a wonderful addition to my routine.
My husband was laid of end of October, and he’s been filling out so many applications. Praying this month he finds something.
I’m ready for 2026! This will be a great year full of good energy, health, fun events, and enjoying every single moment.
Lately I’ve been in a flare. I may know what triggered the flare. Enjoying scary movies with my husband on days leading up to Halloween and night of Halloween. Or possibly the birthday week of celebrating my birthday. But I did decide to do less and use the wheelchair when needed.
But do I deserve to be this bad right now? NO! It’s really hard when I’m constantly trying to find things that will help. Whether it’s a new supplement, a new exercise, or something for my mind. It just doesn’t work. I keep thinking if I can get back to even where I was 2 months ago that would be so nice. I was still struggling with some things, and needed rest days. But I could do a lot more and then crash, but I had fun.
The other day I went out of the house after getting ready for makeup, dressed, and I wore binder. My abdominal binder is a compression garment that I Velcro close around my abdomen. It’s helped a lot! I can finally go back to church and use it and sit in the chairs.
But this one day I wore it went to my parents house for lunch with my family. And has I was sitting there I just started to get sicker and sicker as if I wasn’t wearing the binder. So I thought what usually helps well alcohol actually helps me stay upright and can have energy to do fun things. So I had someone grab me a high noon. A few sips just hoping wishing it would work. And it didn’t. I had to cut the time short and go home good thing I live a few doors down from my parents though.
I was racking my brain…why isn’t this working? What’s going on? I prayed. I cried. I felt despair.
That was a week ago. It’s a flare for sure but new symptoms too.
I just gotta keep praying. Asking for peace. Assurance. Happy moments. I need to give it to God. I need to leave it all at the foot of the cross.
Teresa Love 
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